Supporters 
"The FamilieSCN2A Foundation encourages all patients enrolled in research to create a CRID (Clinical Research ID). This is a free service that allows the patient to take control of their own data. By sharing your CRID, researchers can then reuse, merge and share your research data (without using your PII/PHI)." - Leah Schust Myers, FamilieSCN2A
"Using a CRID empowers the patient's family to be in control of their own research data, allowing them to share their data with whomever they want when they want.
This is an important step in sharing data across silos so the burden on the patient family can be reduced and research can move forward faster." - Tracy Dixon-Salazar, PhD. LGS Foundation
News
Jan 9th, 2025
CLIRINX is committed to keeping CRID operational because it plays a critical role in advancing rare disease research. The platform remains highly active and continues to provide invaluable service to the rare disease community.
Nov 14th, 2024
The CRID server infrastructure has been upgraded to use the latest Amazon AWS components! This enhancement improves performance, security and reliability.
Mar 7th, 2024
NR2F1 Foundation | Webinar | CRID with Gerry Nesbitt
Mar 1st, 2024
Creating a New Account is now a 2-step process to help ensure all email addresses are genuine.
Jan 16th, 2024
Cure GABA-A | Launch and Learn | CRID with Gerry Nesbitt
Sept 21st, 2022
CRID RESTful API Launched
Aug 23rd, 2022
CRID Training Video
Dec 2nd-6th, 2022
American Epilepsy Society Meeting (Nashville, TN)