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FamiliesSCN2A"The FamilieSCN2A Foundation encourages all patients enrolled in research to create a CRID (Clinical Research ID). This is a free service that allows the patient to take control of their own data. By sharing your CRID, researchers can then reuse, merge and share your research data (without using your PII/PHI)." - Leah Schust Myers, FamilieSCN2A

LGS Foundation"Using a CRID empowers the patient's family to be in control of their own research data, allowing them to share their data with whomever they want when they want. This is an important step in sharing data across silos so the burden on the patient family can be reduced and research can move forward faster." - Tracy Dixon-Salazar, PhD. LGS Foundation