Privacy Policy

CLIRINX is committed to protecting the privacy of all visitors to our website, 'TheCRID.org' (“Website” or “Site”). This Website Privacy Policy discloses how we collect and use the information given by you and relating to your use of this Website.

By using this Website, you consent to our collection, use, and processing of your information as described below. CLIRINX reserves the right to change this policy as necessary without notice. If you use this Website after we post changes to this Website Privacy Policy, you accept and agree to be bound by the changes.

Collection and Use of Your Information

CLIRINX collects and uses your information in the following ways:

IP Addresses: We collect and log the IP address of all visitors for the purpose of administering our system and gathering aggregate information about how our Website is being used, including the pages visitors are viewing. By visiting our Website, you are voluntarily supplying this information. We do not associate IP addresses with records containing personal information. We will use IP address information, however, to personally identify you in order to enforce our legal rights or when required to do so by law enforcement authorities.

'Cookies': 'Cookies' are pieces of information that many websites store on your computer's hard drive when you visit them. In most cases, a Web browser will automatically accept cookies. We DO NOT use 3rd party tracking tools like Google Analytics. Cookie names starting with 'cx' are CRID cookies. 'cxprivacy' records if you accepted the website's privacy policy, 'cxsession' or 'PHPSESSID' is used to maintain a login session, 'cxlang' is used to store your language preference and 'cxvisid' is used to track returning visitors. Users should be able to change browser settings to disable cookies. Disabling cookies will make it more difficult to use some parts of the Website that requires you to be logged in. For more information about deleting cookies, see the Web browser's help section.

E-mail Communication: Communication you send to us via email links on our Website may be shared with a customer service representative or other staff member who can best address your inquiry. We make every effort to respond in a timely fashion once communications are received. However, messages sent to us via normal e-mail (not encrypted) can be intercepted by another Internet user while the e-mail is in transit to us. E-mail does not provide a completely secure and confidential means of communication. Please do not send any personal health information via e-mail. It is the policy of CLIRINX to not accept or communicate protected health information via unencrypted e-mail.

Forms: CLIRINX collects and stores information you voluntarily enter on our Site or give us in any other way, such as name, email address, sex, and date of birth. You can also input your disease name, gene and genetic variant, but these are not mandatory. This could also include information you submit on forms, such as newsletter request forms, appointment request forms, and site surveys. Some forms may collect sensitive information, such as health information.

Navigation: CLIRINX may record the navigation of our Website by some website visitors. The recording will consist of navigation of the Website and cannot access any other information in your browser or on your computer. The monitoring will not save or record any personal health information or any identifiable information. The only purpose of this monitoring is to improve the accessibility of the site. By accessing CLIRINX Website, 'TheCRID.org', you agree and consent to have your navigation of the Website recorded.

CLIRINX may also use the information collected in order to:

• Optimize the performance and user experience of our Site.
• Operate, evaluate, and improve our business.
• Fulfill requests for products, services, or information.
• Deliver or install products. Market and advertise products and services.
• Conduct research and analysis.
• Communicate with you about your account, special events, surveys, newsletters, new research studies, reminders, or requests.
• Establish and manage your accounts with us.

Retention of Your Information

CLIRINX will keep your personal information for as long as your account is active or as needed to provide you services, comply with our legal obligations, resolve disputes, and enforce our agreements.

News Letters and Contacting Users

CLIRINX will send an email at least every 2-3 months weeks to all users reminding them of their account details and CRID identifiers. We may also send occassional emails with regards to informing you of (1) new sevices or improvements, (2) relevant research studies that a third party wanted us to inform you about, (3) schedule maintenance windows

Sharing Your Information with Third Parties

CLIRINX may share the information we collect about you with third parties who we have engaged to help us provide the services. In each case, we will ensure that these third parties have agreed to safeguard your information. Your private data will never be sold or shared with anyone.

We may provide third parties with aggregate statistics about our visitors, traffic patterns and related Site information. These data reflect Site-usage patterns gathered during visits to our Website each month, but they do not contain information that personally identifies you unless you have given us permission to share that information.
We may use or disclose your personal information if required to do so by law or on the good-faith belief that such action is necessary to: (1) conform to applicable law or comply with legal process served on us or our sites; (2) protect and defend our rights or property, the sites or our users; or (3) act to protect the personal safety of us, users of the sites or the public.

Children’s Privacy

CLIRINX Website is not intended or designed to attract children, located anywhere, under age 16. CLIRINX does not knowingly disclose personal information under age 16 to any third party in any form from children under age 16 to any third party in any form without parental/legal guardian consent.

Users in the European Economic Area (“EEA”)

Please see our GDPR policy by clicking here

Acceptance of These Terms

This Website Privacy Policy is incorporated into and subject to the terms of the Website Terms and Conditions of Use. Each time that you use this Website, you show that you have read, understood and agree to be bound by the Website Terms and Conditions of Use, which incorporates this Website Privacy Policy. If you do not agree to the terms of this Website Privacy Policy, please do not use this Website.